Alzheimer’s disease related quality of life (ADRQL)
Rabins‚ Kasper‚ Kleinman‚ Black‚ & Patrick‚ 1999; Kasper‚ Black‚ Shore‚ & Rabins‚ 2009
کیفیت زندگی مرتبط با بیماری آلزایمر
A. Those statements are about relating to and being around other people.
1. He/She smiles or laughs when around other people
2. He/She does not pay attention to the presence of others
3. He/She will stay around other people
4. He/She seeks contact with others by greeting people or joining in conversations
5. He/She talks with people
6. He/She touches or allows touching such as handshakes‚ hugs‚ kisses‚ pats
7. He/She can be comforted or reassured by others
8. He/She reacts with pleasure to pets or small children
9. He/She smiles or laughs or is cheerful.
10.He/She shows delight
11.He/She shows a sense of humor
12.He/She sits quietly and appears to enjoy the activity of others even though he/she is notactive participating
B. These statements are about a person’s special identity and important relationships.
1. He/She talks about or still does things related to his/her previous work or daily activities
2. He/She is aware of his/her place in the family such as being a husband/wife‚ parent‚ or grandparent
3. He/She makes or indicates choices in routine daily activities such as what to wear‚ what to eat‚ or where to sit.
4. He/She shows interest in events‚ places or habits from his/her past such as old friends‚ former residences‚ churchor prayer.
5. He/She does not respond to his/her own name
6. He/She does not express beliefs or attitudes that he/she always had.
7. He/She talks with people on the telephone.
8. He/She gets enjoyment from or is calmed by his/her possessions or belongings
C. These statements are about different types of behavior in the last 2 weeks.
1. He/She squeezes‚ twists‚ or wrings his/her hands
2. He/She throws‚ hits‚ kicks‚ or bangs objects.
3. He/She calls out or yells or curses or makes accusations
4. He/She locks or barricades himself/herself in his/her room/house/apartment
5. He/She is irritable or easily angered
6. He/She cries‚ wails‚ or frowns
7. He/She is restless and wound up‚ or repeats actions such as rocking‚ pacing‚ banging against walls
8. He/She resists help in different ways such as with dressing‚ eating or bathing‚ or by refusing to move.
9. He/She appears to be content or satisfied.
10.He/She becomes upset or angry when approached by another person.
11.He/She pushes‚ grabs‚ or hits people
12.He/She is upset or unsettled in his/her living environment.
D. These statements are about usual activities in the last 2 weeks.
1. He/She enjoys doing activities alone such as listening to music or watching TV
2. He/She does not take part in activities he/she used to enjoy‚ even when encouraged to take part
3. He/She shows no signs of pleasure or enjoyment when taking part in leisure activities or recreation
4. He/She dozes off or does nothing most of the time
E. These statements are about behavior in a person’s living environment in the last 2 weeks.
1. He/She talks about feeling unsafe or says his/her belongings are not safe
2. He/She is upset or unsettled when in places other than where he/she lives
3. He/She talks about wanting to leave or go home
4. He/She says he/she wants to die
شرح سایت روان سنجی: این ابزار مصاحبه با بیماران آلزایمری، مراقبان و آگاهان برای ارزیابی کیفیت زندگی بیماران آلزایمری است. نسخه اصلی دارای 47 ماده و نسخه بازنگری شده 40 ماده با پنج زمینه: تعامل اجتماعی، آگاهی ازخود، خلق و احساس، لذت بردن از فعالیت و پاسخ به محیط است .
Social Interaction‚ Awareness of Self‚ Feelings and Mood‚ Enjoyment of Activities‚ Response to Surroundings
اعتبار: هماهنگی درونی، آلفا کرونباخ 0.88
نمره گذاری:
AGREE‚ DISAGREE
چگونگی دستیابی
منبع برای آگاهی بیشتر
If you wish to use the ADRQL research instrument‚ please email Betty Black‚Ph.D. at bblack@jhmi.edu
Rabins‚ P. V.‚ Kasper‚ J. D.‚ Kleinman‚ L.‚ Black‚ B. S.‚ & Patrick‚ D. L. (1999). Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer disease. Journal of Mental Health and Aging‚ 5‚ 33-48.
Kasper‚ J. D.‚ Black‚ B. S.‚ Shore‚ A. D.‚ & Rabins‚ P. V. (2009). Evaluation of the validity and reliability of the Alzheimer’s disease related quality of life (ADRQL) assessment instrument. Alzheimer Disease and Associated Disorders‚ 23‚ 275-284.
Shroff‚ Havovi B. (2014). Family Resiliency‚ Sense of Coherence‚ Social Support and Psychosocial Interventions: Reducing Caregiver Burden and Determining the Quality of Life in Persons with Alzheimer’s Disease. Florida Atlantic University‚ Doctoral Dissertation.